NCPC seek views on end of life care

Posted on Wed 29 Oct 2014

NCPC seek views on end of life care
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Almost half a million people die in England each year. However, significant numbers of people do not currently have proper opportunities for their choices about how, when and where they receive end of life care to be identified, discussed or met.

That is why the Government has set up a review of choices in end of life care, chaired by Claire Henry, the Chief Executive of the National Council for Palliative Care (NCPC). The Race Equality Foundation is supporting the NCPC in this work. The information gathered will outline the kinds of choices that people want to make at the end of life and information about the funding, systems and processes that would be needed to enable choices to be acted upon.

The review focuses on end of life care for adults aged 18 and over, and within the current legal framework. Therefore, it does not focus on assisted dying or anything that would involve changes to mental capacity legislation.

NCPC want to know:

a)  What a ‘national choice offer’ for end of life care should consist of
They would like to hear about the kinds of choices people should be able to make at the end of their life given that resources, such as funding, are finite and there is inevitably the need to prioritise.
b) How a ‘national choice offer’ for end of life care could be achieved
For any ‘choice offer’ to be meaningful it also needs to be realistic, effective and consistent. NCPC are therefore inviting views on the things that would need to happen to ensure that any ‘national choice offer’ is achievable.  To help us understand this they want to hear about:

  • The extent to which people currently have choices at the end of life and examples of good practice, where people have been able to make choices at the end of life and how these choices have made a difference to their experience and quality of care and support.
  • What would need to be in place for people to be able to make informed choices about their care and support at the end of life and be confident they will be acted upon? There are examples here
  • How we would know if a ‘national choice offer’ improved people’s experience of care at the end of life. For example, how we might be able to measure and evaluate the impact on the quality of care and support received.

If you would like to participate in the review, please email to share your views, or complete this online survey.